Tuesday, January 18, 2011
I spoke with the nurse practitioner from the keto team
today. She wanted to know how the Keppra wean was going and I wanted
to know about his lab results. I told her that I didn't think that he was
having any more seizures since going down on Keppra but I haven't been counting
each spasm. We were hoping that with the decrease of carbs he would have
fewer seizures. She wants us to stop the wean and stay on the dose we are
on. His blood ketones were actually 5.85 so we cannot increase his ratio.
That is well within the normal range for blood ketones.
So now what? Well, it's not what I thought they would
suggest. The neurologist wants us to down on the ratio to 4:1. This
is to see if the diet is working. He thought that maybe he could be
having 2 or 3 times the amount of seizures if he wasn't on the diet.
I feel like I am at a loss right now. I just want his
seizures to decrease and him not struggle. It's horrible to watch my
baby have a spasm and then poke his little lip out and he starts to
whimper. IT'S HORRIBLE! I hoped and prayed that the keto diet would
be his wonder "drug". I guess that's not the case.
No comments:
Post a Comment